"Biobanks -- Law and legislation -- Great Britain." . . "Biobanks Law and legislation Great Britain." . "Zakonodaja." . . . . "Electronic books"@en . . . . . . . . . . . . "Governing Biobanks Understanding the Interplay between Law and Practice"@en . "Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover." . "Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover."@en . . . . . . . . . . . . . . . . . . "Governing biobanks understanding the interplay between law and practice"@en . . "Aufsatzsammlung" . . . . . . . . . . . . . . . . . "Governing biobanks : understanding the interplay between law and practice" . "Governing biobanks : understanding the interplay between law and practice"@en . . "Governing biobanks Understanding the interplay between law and practice" . . . . . . . . . . . . "Using interview data this book provides unique insights and makes recommendations about the governance of biobanking in the future."@en . . . . . . . . . . . . . . . "Biological Specimen Banks legislation & jurisprudence Wales." . . "Database management." . . "Government Regulation Wales." . . "Medizin." . . "Biobanques Angleterre Gestion." . . "Government Regulation England." . . "Government Regulation -- England." . "Forschung." . . "Biological Specimen Banks legislation & jurisprudence England." . . "Biological Specimen Banks -- legislation & jurisprudence -- England." . "Genetica - Archivi di dati - Aspetti giuridici." . . "England." . . "Biobank." . . . . "Biobanques Pays de Galles Gestion." . . "Biobanks -- Management." . . "Biobanks Management." . "LAW Administrative Law & Regulatory Practice." . . "Databases, Genetic ethics England." . . "Databases, Genetic -- ethics -- England." . "Organi (Anatomia) - Trapianto - Aspetti giuridici." . . "Ethik." . . "Biotehnologija." . . "Biological Specimen Banks ethics England." . . "Biological Specimen Banks -- ethics -- England." . "Biobanques Droit Angleterre." . . "Ingegneria biomedica - Archivi di dati - Aspetti giuridici." . . "Databases, Genetic legislation & jurisprudence England." . . "Databases, Genetic --legislation & jurisprudence -- England." . "Public Policy Wales." . . "Genetika." . . "Biobanks -- Law and legislation ." . . "Biobanks Law and legislation." . "Sociología jurídica" . . "Upravljanje zbirk podatkov." . . "Databases, Genetic ethics Wales." . . "Wales." . . "Biobanques Droit Pays de Galles." . . "Databases, Genetic legislation & jurisprudence Wales." . . "Recht." . . "Biological Specimen Banks ethics Wales." . . "Derecho Informática" . . "Humangenetik." . . "Public Policy England." . . "Public Policy -- England." . "Bases de datos" . . "Governance." . .