http://worldcat.org/entity/work/id/1902798334

Out Came the Sun One Family's Triumph over a Rare Genetic Syndrome

Six years into their marriage, Judith Scott and her husband Greg decided to take the next step in becoming a family: having a child. At first unsuccessful, they are blessed with the birth of a beautiful girl, Emily. The joy of having their first child is short lived, however; after just a few months, following numerous trips in and out of the hospital, Emily is diagnosed with a rare and disabling condition, Partial Trisomy 13. Doctors expect additional physical complications and severe learning disabilities, and say Emily will never walk, talk, or read.

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