""Nathaniel, her [author] second child, was born with Apert syndrome, a genetic craniofacial condition that results in a towering skull, a sunken face, and fingers webbed so tightly that hands look like mittens. As a parent, she confronted the unimaginable during Nathaniel's first two years, a harrowing succession of surgeries, endless days in the ICU, the affront of rude gawks and magnetic stare, and the loss of her family's anonymity. But she also came to marvel at Nathaniel's strength and charisma, believing that his exuberant personality was somehow written in the stars."--Jacket."
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This is a placeholder reference for a Topic entity, related to a WorldCat Entity. Over time, these references will be replaced with persistent URIs to VIAF, FAST, WorldCat, and other Linked Data resources.