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http://worldcat.org/entity/work/id/866525316

Chasing miracles the Crowley family journey of strength, hope, and joy

Presents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder.

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http://schema.org/description

  • "In 1998, at 15 months old, Megan Crowley was diagnosed with Pompe Disease, a rare genetic disorder that was likely to reduce her life span to five years at most. Her five-month old brother, Patrick, shared the same disease and its crippling progression. Their father, John Crowley, a freshly minted Harvard MBA graduate, was determined to use his brains and connections to find a cure. He started a family foundation to fund research on Pompe disease and eventually headed a biomedical start-up company with a promising approach."
  • "Presents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder."
  • "Presents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder."@en

http://schema.org/genre

  • "Electronic books"@en
  • "Biography"
  • "Biography"@en

http://schema.org/name

  • "Chasing miracles : the Crowley family journey of strength, hope, and joy"
  • "Chasing miracles the Crowley family journey of strength, hope, and joy"@en