Chasing miracles the Crowley family journey of strength, hope, and joy
Presents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder.
"In 1998, at 15 months old, Megan Crowley was diagnosed with Pompe Disease, a rare genetic disorder that was likely to reduce her life span to five years at most. Her five-month old brother, Patrick, shared the same disease and its crippling progression. Their father, John Crowley, a freshly minted Harvard MBA graduate, was determined to use his brains and connections to find a cure. He started a family foundation to fund research on Pompe disease and eventually headed a biomedical start-up company with a promising approach."
"Presents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder."
"Presents the story of John Crowley and his family as they deal with the challenges of two children in the family having Pompe disease, a rare genetic disorder."@en
This is a placeholder reference for a Topic entity, related to a WorldCat Entity. Over time, these references will be replaced with persistent URIs to VIAF, FAST, WorldCat, and other Linked Data resources.
This is a placeholder reference for a Topic entity, related to a WorldCat Entity. Over time, these references will be replaced with persistent URIs to VIAF, FAST, WorldCat, and other Linked Data resources.
This is a placeholder reference for a Topic entity, related to a WorldCat Entity. Over time, these references will be replaced with persistent URIs to VIAF, FAST, WorldCat, and other Linked Data resources.
Glycogen storage disease type II Patients Biography.
This is a placeholder reference for a Topic entity, related to a WorldCat Entity. Over time, these references will be replaced with persistent URIs to VIAF, FAST, WorldCat, and other Linked Data resources.
This is a placeholder reference for a Topic entity, related to a WorldCat Entity. Over time, these references will be replaced with persistent URIs to VIAF, FAST, WorldCat, and other Linked Data resources.