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Two small footprints in wet sand : a mother's memoir

"'Add life to days when we cannot add days to life.' Thaïs is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. Two Small Footprints in the Wet Sand relates the overwhelming tragedy experienced by a family as a result of a genetic disorder. A true tale told by a mother, it's the story of a little girl, of family, friends, and the medical community united to define life by its beauty rather than its length. On the day Thaïs turns two, her mother, the author Anne-Dauphine Julliand, learns that her child has an untreatable genetic disease, the rarest of the rare, a silent disorder that will slowly paralyze her daughter's nervous system and kill her. Metachromatic leukodystrophy--MLD--is the diagnosis. There is no cure. While the disease may be grim, neither this book nor the people in it are. Grace, dignity, and most of all love mark the lives of all those involved in the care of Thaïs. Julliand does not play down the pain of her child or of her family, or the exhaustion, discouragement, or burden each of them carries. She promises her daughter a full life--not a life like other children have--but a happy life, a life of love. Thaïs's family and the medical staff around her fight to provide comfort and efficient care, to conserve her dignity, to give her love, to 'add life to days when we cannot add days to life.'"--

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  • "Thais is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. Two Small Footprints in Wet Sand relates the overwhelming tragedy experienced by a family as a result of a genetic disorder. A true tale told by a mother, it's the story of a little girl, of family, friends, and the medical community united to define life by its beauty rather than its length. On the day Thais turns two, her mother, the author Anne-Dauphine Julliand, learns that her child has an untreatable genetic disease, the rarest of the rare, a silent disorder that will slowly paralyze her daughter's nervous system and kill her. Metachromatic leukodystrophy--MLD--is the diagnosis. There is no cure. While the disease may be grim, neither this book nor the people in it are. Grace, dignity, and most of all love mark the lives of all those involved in the care of Thais. Julliand does not play down the pain of her child or of her family, or the exhaustion, discouragement, or burden each of them carries. She promises her daughter a full life--not a life like other children have--but a happy life, a life of love. Thais's family and the medical staff around her fight to provide comfort and efficient care, to conserve her dignity, to give her love, to add life to days when we cannot add days to life."
  • "A mother's story of a charming, wonderful little girl, who becomes seriously ill with an incurable disease."
  • ""'Add life to days when we cannot add days to life.' Thaïs is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. Two Small Footprints in the Wet Sand relates the overwhelming tragedy experienced by a family as a result of a genetic disorder. A true tale told by a mother, it's the story of a little girl, of family, friends, and the medical community united to define life by its beauty rather than its length. On the day Thaïs turns two, her mother, the author Anne-Dauphine Julliand, learns that her child has an untreatable genetic disease, the rarest of the rare, a silent disorder that will slowly paralyze her daughter's nervous system and kill her. Metachromatic leukodystrophy--MLD--is the diagnosis. There is no cure. While the disease may be grim, neither this book nor the people in it are. Grace, dignity, and most of all love mark the lives of all those involved in the care of Thaïs. Julliand does not play down the pain of her child or of her family, or the exhaustion, discouragement, or burden each of them carries. She promises her daughter a full life--not a life like other children have--but a happy life, a life of love. Thaïs's family and the medical staff around her fight to provide comfort and efficient care, to conserve her dignity, to give her love, to 'add life to days when we cannot add days to life.'"--"@en
  • ""Va a tener una vida bonita. No ser como la de las demás niñas, pero será una vida de la que podrás sentirte orgullosa. Y en la que nunca te faltará amor". Esta es la promesa que la autora le hace a su hija Thaïs, de tan solo dos años de edad, cuando los médicos descubren que la niña padece una enfermedad genética devastadora para la que no existe cura. Desde ese momento, Anne-Dauphine deja de mirar al futuro para concentrarse en el día a día de la pequeña Thaïs: en sus juegos infantiles, sus visitas al médico, los momentos de alegría y de dolor...Una batalla diaria que consistirá en llenar de vida los días cuando ya no se pueden añadir días a la vida." --P. [4] of cover."
  • "Kar je bilo sprva videti samo motnja v prvih korakih dveletne Thais, se izkaže kot huda dedna bolezen. Starši so pred grozljivo preizkušnjo. Sprejeti morajo neizogibno. Seveda skušajo kljubovati, prelisičiti bolezen. Bralec avtorico spremlja v njeni trpki izkušnji brezupnega otrokovega boja, spremlja napredovanje bolezni, dekličino sprejemanje bolečin, postopno invalidnost in predvsem veliko hrabrost njenih staršev."@sl
  • "Thaïs is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. Two Small Footprints in the Wet Sand relates the overwhelming tragedy experienced by a family as a result of a genetic disorder. A true tale told by a mother, it's the story of a little girl, of family, friends, and the medical community united to define life by its beauty rather than its length. On the day Thaïs turns two, her mother, the author Anne-Dauphine Julliand, learns that her child has an untreatable genetic disease, the rarest of the rare, a silent disorder that will slowly paralyze her daughter's nervous system and kill her. Metachromatic leukodystrophy--MLD--is the diagnosis. There is no cure. While the disease may be grim, neither this book nor the people in it are. Grace, dignity, and most of all love mark the lives of all those involved in the care of Thaïs. Julliand does not play down the pain of her child or of her family, or the exhaustion, discouragement, or burden each of them carries. She promises her daughter a full life--not a life like other children have--but a happy life, a life of love. Thaïs's family and the medical staff around her fight to provide comfort and efficient care, to conserve her dignity, to give her love, to 'add life to days when we cannot add days to life.'"

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  • "Electronic books"
  • "Electronic books"@en
  • "Biography"@en
  • "Biography"

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  • "Dva koraka po mokri mivki : [osebna zgodba]"@sl
  • "Hai dấu chân nhỏ trên cát ẩm"
  • "Twee stapjes op het strand : waargebeurd"
  • "Vēmata stēn ammo"
  • "Deux petits pas sur le sable mouillé"
  • "Two small footprints in wet sand : a mother's memoir"@en
  • "Llenaré tus días de vida"@es
  • "Deux petits pas sur le sable mouillé témoignage"
  • "Deux petits pas sur le sable mouillé : témoignage"
  • "Two Small Footprints in Wet Sand : The Uplifting True Story of a Mother's Brave Quest to Save Her Daughter"
  • "Llenaré tus días de vida : un conmovedor testimonio sobre la fuerza del amor y la importancia de aprovechar cada segundo"
  • "Llenaré tus días de vida : un conmovedor testimonio sobre la fuerza del amor y la importancia de aprovechar cada segundo"@es
  • "Dva koraka po mokri mivki osebna zgodba"@sl
  • "Two Small Footprints in Wet Sand The Uplifting True Story of a Mother's Brave Quest to Save Her Daughter"
  • "Two small footprints in wet sand : the uplifting true story of a mother's brave quest to save her daughter"
  • "Two small footprints in wet sand : the uplifting true story of a mother's brave quest to save her daughter"@en

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